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	<title>#DESPITEDEMENTIA Archives - DementiaHub.SG</title>
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	<title>#DESPITEDEMENTIA Archives - DementiaHub.SG</title>
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		<title>爱的力量：在失智症中活出爱</title>
		<link>https://www.dementiahub.sg/zh-hans/blog/the-power-of-love/</link>
		
		<dc:creator><![CDATA[Admin]]></dc:creator>
		<pubDate>Thu, 09 Mar 2023 03:46:59 +0000</pubDate>
				<category><![CDATA[博客]]></category>
		<category><![CDATA[人士]]></category>
		<category><![CDATA[#DESPITEDEMENTIA]]></category>
		<category><![CDATA[我的至亲是失智症人士]]></category>
		<category><![CDATA[我的失智症生活]]></category>
		<guid isPermaLink="false">https://www.dementiahub.sg/the-power-of-love/</guid>

					<description><![CDATA[<p>一位失智症人士与家人学习如何与失智症共存的心路历程。</p>
<p>The post <a href="https://www.dementiahub.sg/zh-hans/blog/the-power-of-love/">爱的力量：在失智症中活出爱</a> appeared first on <a href="https://www.dementiahub.sg/zh-hans/">DementiaHub.SG</a>.</p>
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									<p>通过晚餐，我们熟知Katherine Lim 女士和她的女儿 Belinda 和 Babara Seet 的经历。她们是新加坡失智症机构（之前简称ADA）所拍摄的第三部<a href="https://youtu.be/mfwUYynpk8A">《尽管患有失智症》系列宣传视频</a> “爱的力量”的女主角。90 高龄的Katherine 患上失智症已约有 10 年之久，她也是我们自我倡导项目《<a href="https://dementia.org.sg/voices/">希望心声》</a>的毕业生。</p>								</div>
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									<p>在一个凉爽多云的下午，视频摄制小组聚集在 Seet 家的餐桌旁。大家都迫不及待地等着享用那锅在炉子上炖了好几个小时香喷喷的金黄鸡肉咖喱。Katherine 一如既往是个完美的东道主，招待大家坐下来一起享用美食。</p><p>烹调咖喱的准备工作在前一天就开始了。看着 Katherine 负责准备这道美味佳肴并为咖喱混合香料，谁也不会想到她已经与失智症共处了10 年。</p>								</div>
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										<img decoding="async" width="800" height="600" src="https://www.dementiahub.sg/wp-content/uploads/2023/03/completed-curry-compressed-1024x768.jpg" class="attachment-large size-large wp-image-52260" alt="" srcset="https://www.dementiahub.sg/wp-content/uploads/2023/03/completed-curry-compressed-1024x768.jpg 1024w, https://www.dementiahub.sg/wp-content/uploads/2023/03/completed-curry-compressed-300x225.jpg 300w, https://www.dementiahub.sg/wp-content/uploads/2023/03/completed-curry-compressed-768x576.jpg 768w, https://www.dementiahub.sg/wp-content/uploads/2023/03/completed-curry-compressed-1536x1152.jpg 1536w, https://www.dementiahub.sg/wp-content/uploads/2023/03/completed-curry-compressed-2048x1536.jpg 2048w" sizes="(max-width: 800px) 100vw, 800px" />											<figcaption class="widget-image-caption wp-caption-text">完成的咖喱大餐。</figcaption>
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															<img decoding="async" width="768" height="1024" src="https://www.dementiahub.sg/wp-content/uploads/2023/03/katherine-headshot-768x1024.jpg" class="attachment-large size-large wp-image-52263" alt="" srcset="https://www.dementiahub.sg/wp-content/uploads/2023/03/katherine-headshot-768x1024.jpg 768w, https://www.dementiahub.sg/wp-content/uploads/2023/03/katherine-headshot-225x300.jpg 225w, https://www.dementiahub.sg/wp-content/uploads/2023/03/katherine-headshot-1152x1536.jpg 1152w, https://www.dementiahub.sg/wp-content/uploads/2023/03/katherine-headshot.jpg 1200w" sizes="(max-width: 768px) 100vw, 768px" />															</div>
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									<h2><strong>早期生活</strong></h2><p>Katherine 在一个大家庭中成长，父亲是中国人，母亲是土生华人。由于家庭富裕，家中有仆人、厨师和司机来打理家庭每日所需，因此她在舒适的环境中成长。她的家庭背景使Katherine 精通多种语言：英语、马来语、福建话、广东话、普通话和潮州话。这使她能够与社区居民及各行各业的人交流。</p><p>Katherine 年轻时就嫁给了 Richard Seet。Richard是一位谦逊的教师。结婚后，Katherine 必须适应一个以孩子和日常家务为中心的生活。她充分的利用自己多方面的背景和才华，例如成为家里的指定司机来接送孩子上、下学和参加课外活动等。她也因此被称为“公路女王”。</p>								</div>
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									<h2><strong>面对失智症的爱与牺牲</strong></h2><p>于2011 年，Katherine 被诊断有阿尔茨海默病。这对她与家人是一个极大的打击。同时，他们的父亲被诊断有癌症。他们一家努力的面对这些突如其来的挑战。起初，Katherine 的诊断使她无法继续做一些自己喜欢并熟悉的事情，例如开车出门兜风和做饭。她变得沮丧、消瘦。</p><p>这些挑战让 Katherine 的四位已成年的子女——三女一男——开始商讨如何分担看护父母的责任。他们怀着生命短暂的信念，趁父母还在世时尽量让他们过的开心、充实。Katherine 坚信像她这样的失智症人士需要在自己的能力范围之内继续保持思维活跃并且踊跃参与活动。</p>								</div>
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										<img loading="lazy" decoding="async" width="800" height="522" src="https://www.dementiahub.sg/wp-content/uploads/2023/03/FUNN-Taipei-trip-celebrating-katherine-bday-1024x668.jpg" class="attachment-large size-large wp-image-52261" alt="" srcset="https://www.dementiahub.sg/wp-content/uploads/2023/03/FUNN-Taipei-trip-celebrating-katherine-bday-1024x668.jpg 1024w, https://www.dementiahub.sg/wp-content/uploads/2023/03/FUNN-Taipei-trip-celebrating-katherine-bday-300x196.jpg 300w, https://www.dementiahub.sg/wp-content/uploads/2023/03/FUNN-Taipei-trip-celebrating-katherine-bday-768x501.jpg 768w, https://www.dementiahub.sg/wp-content/uploads/2023/03/FUNN-Taipei-trip-celebrating-katherine-bday-1536x1002.jpg 1536w, https://www.dementiahub.sg/wp-content/uploads/2023/03/FUNN-Taipei-trip-celebrating-katherine-bday.jpg 1584w" sizes="auto, (max-width: 800px) 100vw, 800px" />											<figcaption class="widget-image-caption wp-caption-text">在台北为 Katherine 庆生。</figcaption>
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									<p><em>Katherine</em><em>，</em><em>Belinda </em><em>和</em><em> Babara </em><em>与其他</em> <a href="https://dementia.org.sg/voices/"><em>“希望心声“</em></a><em>的毕业生一起前往台北度过了一段难忘的时间，并到访台湾阿尔兹海默病协会。</em></p>								</div>
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									<p>Katherine 的两位女儿 Belinda 和 Babara 下定决心要让母亲过得充实。Katherine 亲切地称 Belinda 和 Babara 为她的“两位天使”。为了让母亲的日常生活尽可能地维持正常和愉悦，两姐妹一心要决定做出一些牺牲。Belinda 放弃了高薪的讲师工作，转为一名兼职讲师和顾问，并搬到 Katherine 的家里。Babara 则在周末代替 Belinda 来看护母亲，让Belinda有喘息的时间。她们也都接受过心理辅导训练。</p>								</div>
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										<img loading="lazy" decoding="async" width="768" height="576" src="https://www.dementiahub.sg/wp-content/uploads/2023/03/belinda-katherine-VFH-cohort-1-compressed-768x576.jpg" class="attachment-medium_large size-medium_large wp-image-52264" alt="" srcset="https://www.dementiahub.sg/wp-content/uploads/2023/03/belinda-katherine-VFH-cohort-1-compressed-768x576.jpg 768w, https://www.dementiahub.sg/wp-content/uploads/2023/03/belinda-katherine-VFH-cohort-1-compressed-300x225.jpg 300w, https://www.dementiahub.sg/wp-content/uploads/2023/03/belinda-katherine-VFH-cohort-1-compressed-1024x768.jpg 1024w, https://www.dementiahub.sg/wp-content/uploads/2023/03/belinda-katherine-VFH-cohort-1-compressed-1536x1152.jpg 1536w, https://www.dementiahub.sg/wp-content/uploads/2023/03/belinda-katherine-VFH-cohort-1-compressed-2048x1536.jpg 2048w" sizes="auto, (max-width: 768px) 100vw, 768px" />											<figcaption class="widget-image-caption wp-caption-text">Belinda 和 Katherine 是第 1 批 ”希望心声“的毕业生。</figcaption>
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									<p>为了让母亲继续参与各项活动，Belinda 和 Babara 根据她的兴趣制定了一份日常活动时间表。另一个能够提升Katherine的认知的活动是通过学习小学水平的英文、数学和华文的书籍来让 Katherine 维持敏锐的思维。他们也采用了科技，特别在是 Zoom 平台上与《希望心声》同龄的失智症人士交流，并在 iPad 上玩 Katherine 最喜欢的电动游戏。</p><p>尽管 Katherine 患有失智症， Belinda 和 Babara 不畏困难，仍然持守着随遇而安的精神和对生活积极的态度继续往前行。她们在必要时仍然可以依靠 Katherine 获得生活中的慰藉，例如她亲手做的娘惹菜肴以及充满母爱的建议。</p>								</div>
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									<p>回到餐桌上，他们热情洋溢的泰国帮手正在忙碌地来回走动、预备餐具等。Katherine，Belinda 和 Babara 则急切地想与我们和工作人员分享她们所预备的佳肴，并邀请大家放下手中的设备来共享美食。我们被芳香的香料和浓郁的椰汁咖喱香味所环绕。一家人温馨宽带和爱意也同样弥漫开来。</p>								</div>
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										<img loading="lazy" decoding="async" width="800" height="555" src="https://www.dementiahub.sg/wp-content/uploads/2023/03/katherine-setting-table-copy-1024x711.jpg" class="attachment-large size-large wp-image-52262" alt="" srcset="https://www.dementiahub.sg/wp-content/uploads/2023/03/katherine-setting-table-copy-1024x711.jpg 1024w, https://www.dementiahub.sg/wp-content/uploads/2023/03/katherine-setting-table-copy-300x208.jpg 300w, https://www.dementiahub.sg/wp-content/uploads/2023/03/katherine-setting-table-copy-768x533.jpg 768w, https://www.dementiahub.sg/wp-content/uploads/2023/03/katherine-setting-table-copy-1536x1067.jpg 1536w, https://www.dementiahub.sg/wp-content/uploads/2023/03/katherine-setting-table-copy-2048x1422.jpg 2048w" sizes="auto, (max-width: 800px) 100vw, 800px" />											<figcaption class="widget-image-caption wp-caption-text">Katherine 摆放餐具的情景。</figcaption>
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									<p>请观看关于 Katherine、Belinda 和 Babara 的《尽管患有失智症》的视频。</p>								</div>
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									<p><strong><em>本文首发于新加坡失智症电子报 </em></strong><a href="https://dementia.org.sg/wp-content/uploads/2021/03/ADA-VOD-2021-1.pdf"><strong><em>Voice of Dementia</em></strong><strong><em>（第</em></strong><strong><em> 5 </em></strong><strong><em>卷，第</em></strong><strong><em> 1 </em></strong><strong><em>期）</em></strong></a><strong>。</strong></p><p><strong>请点击</strong><a href="https://www.dementiahub.sg/resource-tagsdespitedementia/"><strong>此处</strong></a><strong>来了解有关新加坡失智症机构的更多信息。</strong></p>								</div>
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		<p>The post <a href="https://www.dementiahub.sg/zh-hans/blog/the-power-of-love/">爱的力量：在失智症中活出爱</a> appeared first on <a href="https://www.dementiahub.sg/zh-hans/">DementiaHub.SG</a>.</p>
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		<title>倘若没有我们, 就毫无关乎我们: 一位失智症倡导者的旅程</title>
		<link>https://www.dementiahub.sg/zh-hans/blog/nothing-about-us-without-us-my-journey-as-a-dementia-advocate/</link>
		
		<dc:creator><![CDATA[Admin]]></dc:creator>
		<pubDate>Thu, 24 Jun 2021 01:52:21 +0000</pubDate>
				<category><![CDATA[博客]]></category>
		<category><![CDATA[人士]]></category>
		<category><![CDATA[#DESPITEDEMENTIA]]></category>
		<category><![CDATA[倡导失智症]]></category>
		<category><![CDATA[Emily Ong]]></category>
		<guid isPermaLink="false">https://www.dementiahub.sg/nothing-about-us-without-us-my-journey-as-a-dementia-advocate/</guid>

					<description><![CDATA[<p>Emily Ong 分享了身为一名失智症倡导者的旅程及她如和提升致力在区域性及全国性的阶层来倡导失智症。</p>
<p>The post <a href="https://www.dementiahub.sg/zh-hans/blog/nothing-about-us-without-us-my-journey-as-a-dementia-advocate/">倘若没有我们, 就毫无关乎我们: 一位失智症倡导者的旅程</a> appeared first on <a href="https://www.dementiahub.sg/zh-hans/">DementiaHub.SG</a>.</p>
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									<p><strong>Emily Ong </strong><strong>分享了身为一名失智症倡导者的旅程及她如和提升致力在区域性及全国性的阶层来倡导失智症。</strong></p><p>我是在与阿尔茨海默病协会 (简称ADA) 的“希望心声”的项目经理 Ruth Wong 的一次讨论中熟知 Kate Swaffer的案例，从而在 2019 年 8 月加入了国际失智症联盟 (简称DAI)，一个为失智症人士所设并由失智症人士管理的全球性组织。该组织的成立是多么令人鼓舞和振奋的一件事。这是对失智症人士的能力和潜能最佳的见证。</p><p>我的第一篇文章是在世界阿尔茨海默病月 #WAM2019内为 国际失智症联盟所撰写的。我在失智症意识月/世界阿尔茨海默病月的第 9 天了上载了“#您好，我是 Emily Ong”的一篇博客。这勇敢的一步，开启了我成为一名失智症倡导者的篇章。</p>								</div>
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				您好，我是 Emily Ong
<br>
<br>
于2017 年 6 月（实际日期我已经忘了），我经历了一生中最可怕的事情——我问了自己：“我需要什么材料来做法式吐司呢？”——这是我最擅长做的早餐。我只记得需要面包，以及一柄煎锅。我努力地回想，却什么都记不起来。			</p>
							<div class="e-q-footer">
											<cite class="elementor-blockquote__author">– 摘自&nbsp;<a href="https://dementiaallianceinternational.org/blog/hello-my-name-is-emily-ong"><u>‘#Hello, My Name is Emily Ong’</u></a></cite>
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									<p>从那时开始，我的失智症倡导旅程在 Kate Swaffer 的支持下扬帆远航。Kate Swaffer是国际失智症联盟的联合创始人、前任主席和现任首席执行官。她全程指引着我。对我而言，倡导是通过当事人（失智症人士）的见证及经历来把一个被高度歧视、敷衍的‘透明’病症来带动改变，并为失智症人士争取更好的生活素质。</p><p>我给了自己两年的时间来装备自己成为一名称职的失智症倡导者。我在脸书的页面刊登了我的第一则分享：<a href="https://www.facebook.com/profile.php?id=100063138464018" target="_blank" rel="noopener"> 《<strong>与</strong><strong>轻微认知功能障碍和年轻型失智症</strong><strong> (YOD)</strong><strong>共存》。</strong> </a>内容涵盖了与智症共存是怎样的生活和应对失智症的策略。同时我也分享有关失智症的信息。我接受了与阿尔茨海默病协会共同主持“希望心声” 项目的邀请。紧接着，我与阿尔茨海默病协会共同设计内容并且一起举办了四个学期。我认为让失智症倡导者参与策划和实施，对于实现该计划的目标并鼓励失智症人士和受到失智症影响的人士采取行动至关重要。这也是在 阿尔茨海默病协会内部营造一种具备包容性的工作文化的关键，以“言行一致”的方式来通过实际行动将失智症人士纳入职场。</p><p>在 Kate Swaffer 和 阿尔茨海默病协会亚太区区域主任 DY Surhaya 的支持下，我开始在区域和全球范围内增强了我的倡导行动。我在世界卫生组织的全球失智症观察站知识交流平台焦点小组和 A.D.I. 认证全球审查小组内任职。我也被邀加入 2022 年 A.D.I. 会议的科学计划委员会。此外，我在 2020 A.D.I. 会议上作为主旨演讲为HOPE掀开序幕。这大大的为我的倡导旅途塑造成型。我也因而对《联合国残疾人权利公约》 (简称U.N.C.R.P.D.)及以环境设计来提高生活素质等方面有了更深入的了解。</p>								</div>
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									<p>于 2020 年 9 月 21 日 2020，在世界阿尔茨海默病报告的发布会上，我被Kate Swaffer 对失智友善设计的言辞转化为实施环境设计的实际行动的呼吁深受启发。就在新加坡国立大学客座教授 Habib Chaudhury 参与了 “希望心声” 的活动后表示他对通过环境设计来打造一个失智友善环境深感兴趣。</p><p>透过他的支持，我在5 月份成立了一个小型的全球区域小组——环境与失智症：特殊兴趣小组 (简称DE-SiG)。该小组聚集了来不同学术领域的专业人士和失智症人士来一同商讨如何在社区内实践失智友善设计，并为此提供专业建议和意见来改善生活素质。该小组也探讨如何设计宁静的自然环境、建筑环境和社区环境等课题。并以最大幅度降低有害影响，减少活动和参与限制等方面来反映社区的共识。</p>								</div>
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										<img loading="lazy" decoding="async" width="1448" height="2048" src="https://www.dementiahub.sg/wp-content/uploads/2022/07/World-Alzheimer-Report-2020-Cover-1448x2048-1.jpg" class="attachment-full size-full wp-image-52403" alt="" srcset="https://www.dementiahub.sg/wp-content/uploads/2022/07/World-Alzheimer-Report-2020-Cover-1448x2048-1.jpg 1448w, https://www.dementiahub.sg/wp-content/uploads/2022/07/World-Alzheimer-Report-2020-Cover-1448x2048-1-212x300.jpg 212w, https://www.dementiahub.sg/wp-content/uploads/2022/07/World-Alzheimer-Report-2020-Cover-1448x2048-1-724x1024.jpg 724w, https://www.dementiahub.sg/wp-content/uploads/2022/07/World-Alzheimer-Report-2020-Cover-1448x2048-1-768x1086.jpg 768w, https://www.dementiahub.sg/wp-content/uploads/2022/07/World-Alzheimer-Report-2020-Cover-1448x2048-1-1086x1536.jpg 1086w" sizes="auto, (max-width: 1448px) 100vw, 1448px" />											<figcaption class="widget-image-caption wp-caption-text">2020 年世界阿尔茨海默病报告。</figcaption>
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									<p>通过这些活动和与其他国际范围的内部合作，我对担任 国际失智症联盟董事会成员充满信心并做好了准备。国际失智症联盟是由失智症人士组成来为失智症人士提供服务的国际小组，并为失智症人士的权利和自主权做出表决。它的八名创始人来自美国、加拿大和澳洲。身为董事会的成员之一，我的愿景是双重的：</p><ol><li>通过国际失智症联盟成为亚太区域失智症人士的代言人并更全面的带出亚太区域多文化的独特性——非英化的失智症社区一直以来都被忽视。DE-SiG 的愿景相同与国际失智症联盟的愿景。我们希望引入来自亚太地区的专家一同讨论并探寻如何打造一个文化合宜及需求敏感的环境。</li><li>通过推广本地文化的方式来拓展国际失智症联盟在亚太地区的影响力，使得 国际失智症联盟的支持和资源能够惠及更广范和更多元化的全球社区。本地化的项目如La Kopi和Lim Teh不会影响国际失智症联盟所提供的支持的素质。</li></ol><p> </p><p>我们（国际失智症联盟）相信只要共同努力，我们必能发掘实质计划来与国际社群执行该计划并从其过程中确保达到涉及人权的需求。我们要让众人知道“倘若没有我们， 就毫无关乎我们”的项目是专为失智症人士所设定的。</p>								</div>
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				“永远不要怀疑一个由深思熟虑且忠诚的公民所组成的小组对世界带来的改变。这确实是它唯一所能够成就的。” 			</p>
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											<cite class="elementor-blockquote__author">– Margaret Meade</cite>
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									<p><em>本文首发于</em><a href="https://dementia.org.sg/" target="_blank" rel="noopener"><em>新加坡失智症机构网站</em></a><em>。</em></p>								</div>
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					<h2 class="elementor-heading-title elementor-size-default">投稿者简介</h2>				</div>
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															<img loading="lazy" decoding="async" width="320" height="320" src="https://www.dementiahub.sg/wp-content/uploads/2022/10/Emily-Ong_320x320.png" class="attachment-full size-full wp-image-34726" alt="" srcset="https://www.dementiahub.sg/wp-content/uploads/2022/10/Emily-Ong_320x320.png 320w, https://www.dementiahub.sg/wp-content/uploads/2022/10/Emily-Ong_320x320-300x300.png 300w, https://www.dementiahub.sg/wp-content/uploads/2022/10/Emily-Ong_320x320-150x150.png 150w" sizes="auto, (max-width: 320px) 100vw, 320px" />															</div>
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					<h5 class="elementor-heading-title elementor-size-default">EMILY ONG</h5>				</div>
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									<p>Emily Ong 是一名导师、讲员、工作坊助教和项目开发者。自 2019 年以来她一直是新加坡失智症机构所承办的“希望心声”的同工。Emily 也是国际阿尔茨海默病协会 董事会成员之一，担任了失智症人士的职位。此外，她也担任了国际阿尔茨海默病协会认证团队的全球审查小组和世界卫生组织全球失智症观察站交流平台的小组成员。</p>								</div>
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									<p><strong><span style="text-decoration: underline;"><a href="https://www.facebook.com/people/Living-with-Mild-Cognitive-Impairment-YOD/100063138464018/" target="_blank" rel="nofollow noopener">Facebook</a></span> | <span style="text-decoration: underline;"><a href="https://twitter.com/emilyong67" target="_blank" rel="nofollow noopener">Twitter</a></span></strong></p>								</div>
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									<p>&gt;&gt; 阅读更多<span style="text-decoration: underline;"><strong><a href="https://www.dementiahub.sg/tag/emily-ong/">Emily Ong</a></strong></span>的博客 </p>								</div>
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					<h2 class="elementor-heading-title elementor-size-default"><span style="font-weight: normal">额外资源</span></h2>				</div>
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															<img loading="lazy" decoding="async" width="242" height="300" src="https://www.dementiahub.sg/wp-content/uploads/2023/09/Living-with-Dementia-Voices-of-Asia-242x300.png" class="attachment-medium size-medium wp-image-39790" alt="" srcset="https://www.dementiahub.sg/wp-content/uploads/2023/09/Living-with-Dementia-Voices-of-Asia-242x300.png 242w, https://www.dementiahub.sg/wp-content/uploads/2023/09/Living-with-Dementia-Voices-of-Asia.png 550w" sizes="auto, (max-width: 242px) 100vw, 242px" />															</div>
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									<p><strong><u>与失智症共处</u></strong><strong><u>——</u></strong><strong><u>亚洲之声</u></strong></p><p>《与失智症共处——亚洲之声》是一个由 13 个亚洲国家的失智症人士及其看护者所撰写的真实故事选集。电子版是由失智症倡导者 Emily Ong 主编。</p><ul><li><a href="https://online.fliphtml5.com/ndtu/calg/#p=1" target="_blank" rel="noopener">电子版</a></li><li><a href="https://www.dementiahub.sg/wp-content/uploads/2023/09/Voices-of-Asia.pdf" target="_blank" rel="noopener">PDF 版</a></li></ul>								</div>
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									<p><strong><u>加强对失智症的应对</u></strong></p><p>STRiDE 是一个旨在加强发展中国家失智症研究能力的项目，支持国家失智症计划的制定、融资、规划、实施和评估。</p><ul><li><a href="https://youtu.be/XUHunDbCXP8" target="_blank" rel="noopener">观看 Emily 的视频</a></li><li><a href="https://stridedementia.turtl.co/story/anti-stigma-toolkit/page/1" target="_blank" rel="noopener">阅读更多关于 STRiDE 的信息</a></li></ul>								</div>
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		<p>The post <a href="https://www.dementiahub.sg/zh-hans/blog/nothing-about-us-without-us-my-journey-as-a-dementia-advocate/">倘若没有我们, 就毫无关乎我们: 一位失智症倡导者的旅程</a> appeared first on <a href="https://www.dementiahub.sg/zh-hans/">DementiaHub.SG</a>.</p>
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		<title>寻找回家的路</title>
		<link>https://www.dementiahub.sg/zh-hans/blog/wayfinding-and-dementia/</link>
		
		<dc:creator><![CDATA[Admin]]></dc:creator>
		<pubDate>Tue, 22 Jun 2021 01:52:09 +0000</pubDate>
				<category><![CDATA[博客]]></category>
		<category><![CDATA[学习]]></category>
		<category><![CDATA[#DESPITEDEMENTIA]]></category>
		<category><![CDATA[Emily Ong]]></category>
		<category><![CDATA[失智症与艺术]]></category>
		<category><![CDATA[寻路指南]]></category>
		<guid isPermaLink="false">https://www.dementiahub.sg/wayfinding-and-dementia/</guid>

					<description><![CDATA[<p>失智症在新加坡日益普遍，新加坡失智症机构一直坚定着机构的信念去支持受失智症影响的人士。随着融合失智症倡导的开展，新加坡失智症机构希望让年长者和失智症人士能够继续在他们熟悉的地区养老、生活和继续成长。</p>
<p>The post <a href="https://www.dementiahub.sg/zh-hans/blog/wayfinding-and-dementia/">寻找回家的路</a> appeared first on <a href="https://www.dementiahub.sg/zh-hans/">DementiaHub.SG</a>.</p>
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									<p><strong>失智症在新加坡日益普遍，新加坡失智症机</strong><strong>构一直坚定着</strong><strong>机构</strong><strong>的信念去支持受失智症影响的人士。随着融合失智症倡导的开展，新加坡失智症机构希望让年长者和失智症人士能够继续在他们熟悉的地区养老、生活和继续成长。</strong><strong>哥本峇鲁</strong><strong>社区的寻路项目就是这样的一个倡导。本机构自</strong><strong> 2018 </strong><strong>年以来一直积极地走访社区，提升基层成员和居民对失智症的认识。</strong></p><p>于2019 年 3 月，在与哥本峇鲁单选区的国会议员 Henry Kwek 先生进行对话后，我们启动了寻路项目。此次，焦点小组的讨论由新加坡失智症机构和失智症人士负责。</p><p>在新加坡地我们一共有14 个失智友善社区，这归功于本地基层的努力，目的是为失智症人士建立一个具备关爱和共融式的社区。这个项目是由本地卫生部和护联中心（简称AIC）与社区伙伴所合作而成。</p><p>护联中心也在义顺和杨厝港启动了负责其他寻路项目，该项目也有设计师的参与。这些项目包括对住宅区进行颜色分区、绘制图标和壁画，让这些政府组屋和常用路线变得更容易识别。</p><p>在新加坡失智症机构负责的寻路项目中，由哥本峇鲁基层成员共同合作下确认了老年人和失智症人士比例较高的住宅区。截至 2021 年 4 月，新加坡失智症机构已在杨厝港 3 道和 4 道的 10 栋政府组屋完成了37 幅壁画。</p><p>尽管建立失智友善社区的倡导各不相同，但哥本峇鲁寻路项目的独特之处是失智症人士的参与讨论和执行任务。通过这样的做法，我们不仅坚定了在所有行动中实践融合性的信念，还可以赋权于失智症人士，在很大程度上改变了他人对失智症人士的看法，将他们视为有能力的贡献者。</p>								</div>
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					<h2 class="elementor-heading-title elementor-size-default"><b>宏茂桥 3 道的壁画
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										<img loading="lazy" decoding="async" width="800" height="534" src="https://www.dementiahub.sg/wp-content/uploads/2022/07/DSG-Web-Article-Finding-My-Way-Home-3-1024x683.jpg" class="attachment-large size-large wp-image-53921" alt="" srcset="https://www.dementiahub.sg/wp-content/uploads/2022/07/DSG-Web-Article-Finding-My-Way-Home-3-1024x683.jpg 1024w, https://www.dementiahub.sg/wp-content/uploads/2022/07/DSG-Web-Article-Finding-My-Way-Home-3-300x200.jpg 300w, https://www.dementiahub.sg/wp-content/uploads/2022/07/DSG-Web-Article-Finding-My-Way-Home-3-768x512.jpg 768w, https://www.dementiahub.sg/wp-content/uploads/2022/07/DSG-Web-Article-Finding-My-Way-Home-3.jpg 1400w" sizes="auto, (max-width: 800px) 100vw, 800px" />											<figcaption class="widget-image-caption wp-caption-text">寻找回家的路</figcaption>
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									<p>我们采访了新加坡失智症机构的两名年轻型失智症的义工 Emily Ong 女士和 Anjang Rosli 先生来分享作为项目团队一员的观点和经验，该项目团队率先在哥本峇鲁创作了标志性的壁画。</p><p><strong> </strong><strong>1.</strong><strong>请与我们分享，您是如何参与哥本峇鲁寻路项目的？</strong><strong> </strong></p><p><strong>Emily</strong><strong>：</strong>我们在与哥本峇鲁单选区的国会议员 Henry Kwek 先生对话后，获得了参与这个项目的机会。组织这次的对话是我们“希望心声”项目的一部分，这是为了让我们在自我倡导的旅途中，赋权于失智症人士和我们的看护者。</p><p>在与 Henry Kwek 先生对话之前，我感到非常激动，并请丈夫带我去哥本峇鲁市镇中心进行了场堪，体验作为一名失智症人士在镇上寻找方向的感受。我们在对话会议上讨论了如何广大社区并以不同的方式来更好地支持当地社区的失智症人士。</p><p><strong>Anjang</strong><strong>：</strong>新加坡失智症机构邀请我参与了壁画寻路项目。我感到非常高兴和激动，我之前曾在自己的社区（兀兰）走失，因为所有的组屋底层都非常相似。电梯和大厅看起来也都十分相似，我们很容易就会迷路。</p><ol start="2"><li><strong>您认为整个过程是怎样的？</strong></li></ol><p><strong>Emily</strong><strong>：能够与</strong>项目团队的成员一起同工是一个非常赋权的经历。我能够轻松的分享自己的观点，我的建议也被同工重视和认可。我想说的是，参与项目以及我们之间的整体合作对 Anjang 和我来说是何等的荣幸。该结果融合了每一位同工的观点——那些具有壁画寻路经验的人士、新加坡失智症机构的专业看护者、艺术家，以及哥本峇鲁的基层社区领袖。</p><p>最后，这不仅是视觉提示，更重要的是这些视觉提示如何成为“推动因素”来支持失智症人士记住和识别所居住的政府组屋，帮助他们自信地找到回家的路。</p><p><strong>Anjang</strong><strong>：</strong>这整个过程使我感到被赋权。这确实是一个团队的努力。很高兴还能与其他失智症人士一起同工。这种感觉很棒，因为我知道无论采取什么措施，都可以帮到失智症人士。我们参与了讨论，探讨在哪里放置壁画，绘制哪一些墙壁可以在失智症人士经过时帮助他们识别自己所在的政府组屋。这个过程很有趣，我们在完成后获得了莫大的成就感。</p><p><strong> 3.</strong><strong>您最喜欢哪一幅壁画？为什么？</strong></p><p><strong>Emily</strong><strong>：</strong>我认为“红龟糕”的壁画有特殊的意义，因为它是我已故的奶奶和我最喜欢的糕点。这种情感上的回忆对于失智症人士而言是非常重要的。对任何人来说都是最深刻的回忆。因此，哥本峇鲁的寻路项目便是以情感上的回忆为基础。</p><p><strong>Anjang</strong><strong>：</strong>我最喜欢的是大白兔奶糖。它确实让我想起了在儿时每天放学后要走 3 公里回家的日子。大白兔奶糖是我那段漫长步行的每日伴侣。</p>								</div>
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					<h2 class="elementor-heading-title elementor-size-default"><b>一位义工正在绘制受欢迎的“红龟糕”糕点
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										<img loading="lazy" decoding="async" width="800" height="534" src="https://www.dementiahub.sg/wp-content/uploads/2022/07/DSG-Web-Article-Finding-My-Way-Home-2-1536x1024-1-1024x683.jpg" class="attachment-large size-large wp-image-53924" alt="" srcset="https://www.dementiahub.sg/wp-content/uploads/2022/07/DSG-Web-Article-Finding-My-Way-Home-2-1536x1024-1-1024x683.jpg 1024w, https://www.dementiahub.sg/wp-content/uploads/2022/07/DSG-Web-Article-Finding-My-Way-Home-2-1536x1024-1-300x200.jpg 300w, https://www.dementiahub.sg/wp-content/uploads/2022/07/DSG-Web-Article-Finding-My-Way-Home-2-1536x1024-1-768x512.jpg 768w, https://www.dementiahub.sg/wp-content/uploads/2022/07/DSG-Web-Article-Finding-My-Way-Home-2-1536x1024-1.jpg 1536w" sizes="auto, (max-width: 800px) 100vw, 800px" />											<figcaption class="widget-image-caption wp-caption-text">寻找回家的路</figcaption>
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									<p><strong>4.</strong><strong>我们知道为了帮助年长的失智症人士四处走动，</strong><strong>义顺</strong><strong> HDB </strong><strong>政府组屋</strong><strong>选择了使用颜色来帮助失智症人士认路。然而，我们也了解</strong><strong>哥本峇鲁的寻路项目</strong><strong>以不同的壁画来帮助失智症人士认路。您对这两种不同的方法有什么想法？</strong></p><p><strong>Emily</strong><strong>：</strong>人类寻找方向包括了两个过程：决定去哪里和如何毫无阻碍的到达目的地。无论提供哪一种类型的视觉提示，它都必须帮助我们确认方向，然后通过明确的起点和终点来规划路线，并在帮助我们前往目的地的过程中监控过程。最终在到达目的地后能够识别视觉提示。归根结底，这取决于我们如何理解、体验和利用视觉提示，以及如何用这些提示来认路。</p><p>虽然这两个项目都是寻路项目，但它们之间的主要区别在于哥本峇鲁的壁画是考虑到失智症人士对视觉提示的感应，以及我们随后对它所产生的反应。这种情况是很可能发生的。该项目是由两位具有亲身经历的人来担任规划和决策的工作，我们对环境刺激的敏感性较低，所以可能会因为与寻路任务无关的视觉提示分散注意力。同时，我们处理信息的能力也相对较弱。这些因素都被考虑入哥本峇鲁寻路壁画的布置和设计中。</p><p>为了支持决策和确保失智症人士能够找到回家的路，我们只在关键位置绘制了这些壁画。每幅壁画最多只有三种颜色。由于牵涉到多个感官的刺激会使我们有限的注意功能不堪重负。这也解释了政府组屋大牌的尺寸相对较小的原因—为了避免与壁画争夺注意力。以颜色的差异，精心挑选的壁画考虑到了特定社区的文化和年龄因素。除了选择较显眼和易读的特点之外，还增添了一丝意义和熟悉感。</p><p><strong>Anjang</strong><strong>：</strong>我认为整个柱子都涂上同一种颜色会让我感到不知所措。义顺的设计没有采用联想回忆。当涉及大量信息时，我便无法处理所有细节，这增加了我的混淆程度。我真的很喜欢哥本峇鲁的壁画，因为它们很吸引人，同时也反映了文化和回忆。哥本峇鲁社区的壁画有更多的特点，这些壁画让我想起快乐和幸福的回忆。我认为这对失智症人士更有帮助。</p><p><strong> 5.</strong><strong>您可否从失智症人士的角度与我们分享，在我们的社区中如何为失智症人士提供其他寻路的方法？</strong></p><p><strong>Emily</strong><strong>：</strong>我认为自己会倡导在社区和通道采用适合失智症人士的灯光。这将会减轻失智症人士的焦虑。光线不足会降低我们对周围环境的感知能力，提升了寻找方向的难度。因此，可以进一步研究在通道和底层提供灯光，并在电梯区域提供局部设有足够的灯光，这么一来便可以帮助我们寻找方向。</p><p><strong>Anjang</strong><strong>：</strong>因为我有路易体失智症，所以我的视觉感知功能会受到影响。请避免使用深色的瓷砖，并且要注意使用的灯光不会投下影子。影子会让我产生恐惧，因为当我看到这些影子时，我很可能会产生幻觉。</p><p><strong> 6.</strong><strong>请您代表失智症人士的自我倡导者，与我们分享社会该如何更有包容性地对待失智症人士。</strong></p><p><strong>Emily</strong><strong>：</strong>我们需要一个能够接受和欣赏失智症人士的社会，将我们看为拥有与社会规范不同的思维、行为和自我表达的个体。尽管我们患有认知障碍，但我们像每个人一样有共同的需求——我们是社会的一员，需要感到被接受和被重视。</p><p><strong>Anjang</strong><strong>：</strong>社区中的每个人都应该学会如何识别和帮助失智症人士。请不要争论，并对我们有耐心。</p><p>有时我在社区中被过多的感官刺激所淹没——噪音、景象、标志、交通、人群——当这种情况发生时，我会感到焦躁并体现负面的反应。因此，我认为社区要实现对失智症人士的包容，关键在于提升对失智症认识。遗憾的是，由于我们的病情是隐形不可见的，很可能在我体现出负面反应时，周围的人才会意识到我有失智症。在其他没有经历这些触发事件的日子里，我一直在学习如何自我应对和寻找方向。因此，请不要将我们的反应看为负面。相反的，请对我们有多一点耐心并理解我们的反应。这是我们向您传达自己需要被帮助的一种方式。</p><p><em>本文是根据</em><em>新加坡失智症机构网站</em><em>的原文而编。</em></p>								</div>
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		<p>The post <a href="https://www.dementiahub.sg/zh-hans/blog/wayfinding-and-dementia/">寻找回家的路</a> appeared first on <a href="https://www.dementiahub.sg/zh-hans/">DementiaHub.SG</a>.</p>
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		<title>失智症和工作技能 – 给我们再职的机会</title>
		<link>https://www.dementiahub.sg/zh-hans/blog/dementia-and-work-skills-give-us-a-chance-to-remain-employed/</link>
		
		<dc:creator><![CDATA[Admin]]></dc:creator>
		<pubDate>Fri, 05 Feb 2021 01:50:45 +0000</pubDate>
				<category><![CDATA[博客]]></category>
		<category><![CDATA[学习]]></category>
		<category><![CDATA[#DESPITEDEMENTIA]]></category>
		<category><![CDATA[倡导失智症]]></category>
		<category><![CDATA[Emily Ong]]></category>
		<category><![CDATA[年轻型失智症]]></category>
		<guid isPermaLink="false">https://www.dementiahub.sg/dementia-and-work-skills-give-us-a-chance-to-remain-employed/</guid>

					<description><![CDATA[<p>脑神经失调病症，如失智症，一般上并不会突然间让一个人失去工作能力，除非是急进性失智症。</p>
<p>The post <a href="https://www.dementiahub.sg/zh-hans/blog/dementia-and-work-skills-give-us-a-chance-to-remain-employed/">失智症和工作技能 – 给我们再职的机会</a> appeared first on <a href="https://www.dementiahub.sg/zh-hans/">DementiaHub.SG</a>.</p>
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                    <audio aria-label="音频 失智症和工作技能 – 给我们再职的机会"class="wp-audio-shortcode" id="audio-47054-4" preload="metadata" style="width: 100%;" controls="controls"><source type="audio/mpeg" src="https://www.dementiahub.sg/wp-content/uploads/speaker/post-47054.mp3?cb=1719470860.mp3&#038;_=4" /><a href="https://www.dementiahub.sg/wp-content/uploads/speaker/post-47054.mp3?cb=1719470860.mp3">https://www.dementiahub.sg/wp-content/uploads/speaker/post-47054.mp3?cb=1719470860.mp3</a></audio>
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									<p>脑神经失调病症，如失智症，一般上并不会突然间让一个人失去工作能力，除非是急进性失智症。很多失智症人士都过着长久、良好的生活，但是我们也得保持体格健壮、脑子灵敏、活跃的社交及健康的饮食习惯。</p><p>然而，某个积极生活的层面是需要社会的支持及谅解的 – 年轻型失智症 （简称 YOD）。 <br /><br />收到“强迫性”的辞退是最难接受的。 <br /><br />很多年轻型失智症人士因认知功能下滑而辞去他们的工作，尤其在执行一些职能技能方面。有些技能也将无法再以最佳水平发挥作用。例如策划、时间管理、组织技能、多重任务处理等方面都会被认知功能下降而受影响。虽然个人的生产力、效率和有效性都有可能被影响，但是多年累积的工作经验都可以覆盖这些不足。</p>								</div>
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															<img loading="lazy" decoding="async" width="1200" height="800" src="https://www.dementiahub.sg/wp-content/uploads/2022/07/DSG-Website-Dementia-and-Employment-2.jpg" class="attachment-full size-full wp-image-47055" alt="" srcset="https://www.dementiahub.sg/wp-content/uploads/2022/07/DSG-Website-Dementia-and-Employment-2.jpg 1200w, https://www.dementiahub.sg/wp-content/uploads/2022/07/DSG-Website-Dementia-and-Employment-2-300x200.jpg 300w, https://www.dementiahub.sg/wp-content/uploads/2022/07/DSG-Website-Dementia-and-Employment-2-1024x683.jpg 1024w, https://www.dementiahub.sg/wp-content/uploads/2022/07/DSG-Website-Dementia-and-Employment-2-768x512.jpg 768w" sizes="auto, (max-width: 1200px) 100vw, 1200px" />															</div>
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									<p><strong>可操作性</strong></p><ul><li>外部运行环境 — 指工作、工作群组、领导层 </li><li>直接社会环境 — 指价值观、态度、动机、职能 </li><li>家庭 — 指个人健康及工作能力 </li></ul><p><em>源自：Finnish Institute of Occupational Health©</em></p>								</div>
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									<p>“可操作性”所指的是个人资源及工作范围之间的关系。Finnish Institute of Occupational Health的模式提出了相互关联的四大因素： 处于基本阶层的个人健康及工作能力，处于第二阶层的职能及技能，处于第三阶层的价值观、态度及动机，及最高阶层的工作范围、工作环境及组织和领导能力。 </p><p>机构可以考虑及选择合适的工作干预来让患有轻微年轻型失智症（简称 YOD）的员工继续就职。重点是让这些员工持有人生目标及自我价值，而并非经济效益。</p><p>为达到其目标及果效，人事部与轻微年轻型失智症员工的配合是十分重要的。这些员工必须感到适度的安全感，在不被歧视及论断的情况下透露自己的工作职能。</p><p>负面的态度，基于刻板印象及传闻，包括了失智症人士很难受教而且是个负累。这些观点将会影响高层所做的决定并影响员工所处的情况。</p><p>一个包容的职场文化及愿意支持失智症人士的态度将有助于保持他们的工作技能。这是可行的。 政府也应该考虑制定公共卫生政策来支持失智症人士就职。尤其是当年轻型失智症员工在近年来有攀高的局势。</p><p> </p><p><em>这篇评论是对海峡时报于2021年1月19日所刊登的 “<span style="text-decoration: underline;"><a href="https://www.straitstimes.com/opinion/forum/forum-firms-need-to-understand-dementia-better-as-workforce-ages" target="_blank" rel="noopener">Forum: Firms need to understand dementia better as the workforce ages</a></span>” 的回应。</em></p>								</div>
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									<p><strong>书志目录<br /></strong>1. <em>Keeping people with dementia or mild cognitive impairment in employment: A literature review on its determinants</em> by Fabiola Silvaggi et al., International Journal of Environmental Research and Public Health, 29 January 2020.</p><p><em><br />*这篇文章取自<a href="https://dementia.org.sg/" target="_blank" rel="noopener">新加坡失智症机构刊网页</a>。</em></p>								</div>
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					<h2 class="elementor-heading-title elementor-size-default">投稿者简介</h2>				</div>
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															<img loading="lazy" decoding="async" width="320" height="320" src="https://www.dementiahub.sg/wp-content/uploads/2022/10/Emily-Ong_320x320.png" class="attachment-full size-full wp-image-34726" alt="" srcset="https://www.dementiahub.sg/wp-content/uploads/2022/10/Emily-Ong_320x320.png 320w, https://www.dementiahub.sg/wp-content/uploads/2022/10/Emily-Ong_320x320-300x300.png 300w, https://www.dementiahub.sg/wp-content/uploads/2022/10/Emily-Ong_320x320-150x150.png 150w" sizes="auto, (max-width: 320px) 100vw, 320px" />															</div>
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					<h5 class="elementor-heading-title elementor-size-default">EMILY ONG</h5>				</div>
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									<p>Emily Ong 在49岁时就被诊断有脑部神经失调，并在51岁被诊断有颞叶失智症（简称FTD）。Emily也积极地参与新加坡失智症机构的 “失智症之音”项目，以及提倡建设包容失智症人士的环境。</p>								</div>
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									<p><strong><span style="text-decoration: underline;"><a href="https://www.facebook.com/people/Living-with-Mild-Cognitive-Impairment-YOD/100063138464018/" target="_blank" rel="nofollow noopener">Facebook</a></span> | <span style="text-decoration: underline;"><a href="https://twitter.com/emilyong67" target="_blank" rel="nofollow noopener">Twitter</a></span></strong></p>								</div>
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									<p>&gt;&gt; 更多关于 <span style="text-decoration: underline;"><strong><a href="https://www.dementiahub.sg/zh-hans/tag/emily-ong-zh-hans/">Emily Ong</a> </strong></span>文章</p>								</div>
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		<p>The post <a href="https://www.dementiahub.sg/zh-hans/blog/dementia-and-work-skills-give-us-a-chance-to-remain-employed/">失智症和工作技能 – 给我们再职的机会</a> appeared first on <a href="https://www.dementiahub.sg/zh-hans/">DementiaHub.SG</a>.</p>
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		<title>H.O.P.E: 与失智症活出真我的风采</title>
		<link>https://www.dementiahub.sg/zh-hans/blog/h-o-p-e-living-a-normal-life-with-dementia/</link>
		
		<dc:creator><![CDATA[Admin]]></dc:creator>
		<pubDate>Wed, 16 Dec 2020 01:49:15 +0000</pubDate>
				<category><![CDATA[博客]]></category>
		<category><![CDATA[人士]]></category>
		<category><![CDATA[Emily Ong]]></category>
		<category><![CDATA[希望之声]]></category>
		<category><![CDATA[#DESPITEDEMENTIA]]></category>
		<category><![CDATA[倡导失智症]]></category>
		<guid isPermaLink="false">https://www.dementiahub.sg/h-o-p-e-living-a-normal-life-with-dementia/</guid>

					<description><![CDATA[<p>我们为Emily Ong女士深感自豪。Emily是一名失智症倡导者。她在2020年度的全球失智症研讨会中叙述了她的失智症心路历程。</p>
<p>The post <a href="https://www.dementiahub.sg/zh-hans/blog/h-o-p-e-living-a-normal-life-with-dementia/">H.O.P.E: 与失智症活出真我的风采</a> appeared first on <a href="https://www.dementiahub.sg/zh-hans/">DementiaHub.SG</a>.</p>
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									<p><em>我们为Emily Ong女士深感自豪。Emily是一名失智症倡导者。她在2020年度的全球失智症研讨会中叙述了她的失智症心路历程。</em></p><p>我是Emily Ong，一名失智症的倡导者、新加坡失智症机构“希望之声”的导师、全球失智症观景的其一成员及失智症国际联盟的成员之一。我有幸受邀来代表各国的失智症人士来分享“Nothing about us, without us”（中译“不关乎我们，倘若没我们”）的项目。</p><p>我的失智症心路历程由一件法国土司事件开始。法国土司非常美味也十分容易烘制。然而，在一天早晨我突然之间记不起得使用的食料和如何烘制法国土司。我只记得我需要面包。我突然之间对如何烘制法国土司完全毫无概念。我的脑子里一片空白。我完全记不起整个烘制的过程。还在修读医科的长女马上与医院的神经科预约探诊。</p><p>我被诊断患上了年轻型失智症。当时的我仅51岁。这对我而言是一个梦魇。我的脑里浮现了许多毫无答案的问句。年轻、健康的我怎么可能患上失智症？我是否会变成一个完全需要依赖他人的废人？是否有其它与我有同样病症的人？我是否能够恢复成往常的我？</p><p>当时并没有后诊断的支持服务来帮助我接受这残酷的事实，也没有人为我失去未来规划的无助来扶持我。纵然感到无助和惊恐，我还是在家人面前展现一脸坚强的样子。我日夜以眼泪洗脸。我所知道的是失智症是一个无法医治及保存自立的无底深渊。我听闻日托中心有一些能够刺激认知功能的活动，例如打麻将和着色活动。 记忆咖啡厅也有驻唱歌手来通过旧歌金曲帮助唤起我们的回忆。即便如此，我还是感到彷徨无助。</p><p>就在我处于人生的低谷时，我发现了新加坡失智症机构的“希望之声”的项目。自从被诊断后，这是我第一次看到希望及重拾生活的可能性。</p><p>在这个项目的其中，我与其它失智症人士欢笑、讨论及分享我们的心路历程，从中鼓励及扶持彼此。简单的说，我们开始重拾我们的生活！</p><p>以下是我想与您分享及鼓励的一句话：活出真我的风采。您的生活的确将跟往常不一样。您将会经历改变，甚至需要调整您的期望及适应您所仅有的能力。但是千万不要置疑您本身的潜能。</p><p>失智症人士及其看护者需要社区里的支持来面对生命里的展望、期待。请容我与您分享英文缩写H.O.P.E.的定义：</p><ol><li>字母H代表倾听我们的心声，然后分享您的反馈及提供建议。 鼓励我们分享我们的心声。纵然失智症人士的想法、感受、举止、交流与沟通方式都有可能随着时间的推移而改变，但这并不代表我们失去感情、偏好、意见或思想。</li><li>字母O代表给予支持。给予帮助意味着赋予我们能力来维持我们的自理能力。这对失智症人士的自理能力和生活素质有极大的影响。所以尽可能让失智症人士自己决定他们所需要的帮助。</li><li>字母P代表与我们同工。让我们与您分享我们在日常生活里所能够处理的事务。这不但能够赋予我们处事的能力，它也能善用资源及取得更好的果效。</li><li>字母E代表赋予能力。集中在我们仅有的能力。尽量减少并补偿失智症所导致的残疾及任何能力上的变化。失智症人士需要神经或体能的康复计划来帮助他们重拾自理能力及提升体能、情绪及社交上的素质。</li></ol><p> </p><p>请谨记以上H.O.P.E.的四大点来点亮失智症人士的人生。谢谢。　</p><p><em>原稿源自 <span style="text-decoration: underline;"><a href="https://dementia.org.sg/" target="_blank" rel="noopener">新加坡失智症机构网站</a></span>.</em></p>								</div>
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		<p>The post <a href="https://www.dementiahub.sg/zh-hans/blog/h-o-p-e-living-a-normal-life-with-dementia/">H.O.P.E: 与失智症活出真我的风采</a> appeared first on <a href="https://www.dementiahub.sg/zh-hans/">DementiaHub.SG</a>.</p>
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