Work plays a central role in our lives, providing us with a sense of fulfilment, personal development, and income. There are many decisions to make about employment for persons with young-onset dementia, including whether or not to tell your employer, what changes could be made to the workplace and how long to continue working.
The issues related to deciding whether or not to tell an employer about a diagnosis of young-onset dementia can be very complex. There are no set rules that will work for everyone. For many people it will depend on the extent to which symptoms affect their ability to do their job, the pace at which symptoms are progressing, and the support that may be required of (or that’s likely to be offered by) the employer.
There may be no impact on employment for persons with young-onset dementia at the early stages, although a person’s ability to do their work is likely to be affected over time. It is important for people with young-onset dementia to consider a number of options before making a decision about continuing with on-going employment and/ or informing their employer.