What Are Behavioural Changes? - DementiaHub.SG

What Are Behavioural Changes?

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Dementia is accompanied by behavioural changes, which affect persons living with dementia and individuals around them. Behavioural changes can be one of the aspects of dementia that are most difficult to address. Persons living with dementia who experience behavioural changes are often described as having a “completely different personality” from their “old self”. Different behaviour changes occur at different points in mild and moderate stages of dementia, and vary between people and across different types of dementia.

These are some common behaviours exhibited by persons in the mild, moderate, and advanced stages of dementia that vary from person to person:

  • Mild Dementia

    ⇒ Forgetting things
    ⇒ Occasionally repeating themselves
    ⇒ Isolating themselves from others
    ⇒ Feeling tired all the time
    ⇒ Being easily irritated

  • Moderate Dementia

    ⇒ Getting lost in familiar places
    ⇒ Repeating things said
    ⇒ Problems with communication
    ⇒ Neglecting personal hygiene and self-care
    ⇒ Losing track of time & events
    ⇒ Misplacing items more frequently
    ⇒ Behavioural disturbances
    ⇒ Forgetting the names of common objects and familiar people
    ⇒ Forgetting important events, e.g. birthdays of their children
    ⇒ Being confused about timings and places
    ⇒ Poor or decreased judgement
    ⇒ Problems with abstract thinking
    ⇒ Swallowing problems

  • Advanced Dementia

    ⇒ Losing mobility and ability to perform daily tasks
    ⇒ Losing ability to communicate
    ⇒ Food refusal
    ⇒ Swallowing problems

Sometimes, behavioural changes during mild and moderate stages of dementia can cause concern. Some examples of behaviours of concern that are commonly seen include:

Aggression
Agitation
Being easily upset
Being easily irritable
Being prone to argue
Inappropriate screaming, crying, disruptive sounds
Refusal to shower, bathe or be groomed
Running away from home
Anxiety or excessive worry
Apathy or indifference
Delusions and/or hallucinations
Depression

Disinhibition
Sexually inappropriate behaviour
Socially inappropriate behaviour
Hoarding
Irregular Night-time Activity
Getting up at night
Repetitive Behaviours
Resistance to Activities of Daily Living (ADLs)
Sundowning
Wandering behaviours

In the fifth episode of a 6-part series “All About Dementia – Ask the Experts”, Dr Ng Wai Chong explains why persons living with dementia have changes in their behaviours.

Source: Agency for Integrated Care

Causes of Behavioural Changes

Every individual has needs that need to be met. However, as dementia affects the brain which controls all mental functions and voluntary behaviours including thoughts, emotions, and speech, the progression of dementia may cause people to be increasingly less able to recognise their needs, know how to meet them, or communicate them. In addition to this, behaviour changes also occur due to changes in the brain. The type of behaviour change exhibited depends on the areas of the brain affected by the condition causing the person’s dementia as well.

It is also crucial to understand these behaviours from the perspective of the person living with dementia. They may present with these behaviours as a result of their needs not being met, their attempt to meet a need, or an attempt to communicate to individuals around them.

Unmet needs underlying behaviour changes can be generally categorised into the following four factors:

1. Physical Needs: The person living with dementia may be experiencing pain or discomfort, and may be suffering from other illnesses at the same time.

2. Psychological/Cognitive Needs: The person may be depressed or may have other mental health issues. They could also be feeling confused or threatened in an environment that does not seem right or familiar.

3. Social Needs: The person may be feeling lonely, isolated, or bored.

4. Environmental/External Needs: The person may be in an overstimulating environment (e.g., with loud noises or busy environment), or experiencing a different and unfamiliar routine.

Management of Behavioural Changes

It is often the daily, non-pharmacological methods and techniques that turn out to be effective in delaying the development of the person’s dementia in the long-term. Thus, non-pharmacological measures such as psychosocial interventions (e.g., music therapy, cognitive stimulation therapy)  are usually the first-line approach before medication treatment is considered. Sometimes, a combination of both non-pharmacological and pharmacological managements may offer better outcomes too.

Personal Stories

What My Grandmother Was Trying To Say

In this video, Dr. Chen Shiling, who cared for her late grandmother living with dementia, tells us how she has learnt to understand what her grandmother was trying to communicate through many trying episodes and her grandmother’s behavioural changes, which included her making wrongful accusations, wandering behaviour, and depression.

Dr. Chen Shiling is a Resident Physician at Khoo Teck Puat hospital. She was raised by her grandmother who had dementia.

Source: ForgetUsNot Initiative by LIEN Foundation, Khoo Teck Puat Hospital, & Dementia Singapore

Where Is My Money?

Episodes involving accusations, arguments, and tension are trying and stressful for family members. Unfortunately, these situations are common in households with persons living with dementia. In this video, Lily tells us her secret to always being able to ‘find’ missing money that has been misplaced by her mother-in-law.

Lily Phang is a caregiver and co-founder of Homage, a caregiving service. She helps her family to cope with the symptoms and behavioural changes that her mother-in-law, Tan Mui Hua faces.

Source: ForgetUsNot Initiative by LIEN Foundation, Khoo Teck Puat Hospital, & Dementia Singapore

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